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The Resident's Voice
Lived Experiences
and Quality of Life
at the End of Life
in Long-Term Care Homes
In The Resident's Voice, long-term care home residents and their families talk about their past experiences with long-term care and share their current perspectives on what constitutes quality of life.
These stories have been compiled for use as an educational resource. The Resident's Voice is intended to create an opportunity for long-term care home staff to reflect on what they have heard and how it may relate to the care they provide in order to help generate ideas for possible improvements. Discussion guides are being developed to help homes make the best use of these stories.
The stories in The Resident's Voice deal with issues such as falls, consistency of staff assignment and pressure ulcers, and illustrate why the Residents First initiative has chosen these as focus areas for its quality improvement work.
Each story is told in the unique voice of a long-term care home resident or family member. Stories have not been edited for content and the accompanying photographs were chosen by the storytellers.
Highlights from The Resident's Voice Series
Highlights of The Resident's Voice presents an overview of the stories that residents and family members tell about their various experiences and their descriptions of their quality of life in long-term care.
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Lived Experiences Series
Carol Noble | Consistent Staff AssignmentCarole recounts her family's experience with the consistency of staff assignments. > Listen to Story [00:04:43]
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Barbara Comer | IncontinenceBarbara describes her experience with incontinence and the reaction of staff. > Listen to Story [00:02:33]
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Linda Keane-Luke | Emergency Department VisitLinda speaks about the impact of waiting during a visit to the emergency department. > Listen to Story [00:02:06]
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Gord and Daryl Cook | FallsDaryl explains her and Gord's choice of living with the risk of falls.
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Bob MacEwan | Pressure UlcersBob provides details about having pressure ulcers and his wishes for staff as they care for him. > Listen to Story [00:06:17]
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Quality of Life at the End of Life Series
Cheryl Williams | A Feeling of HomeCheryl explains what she needs for getting through every stage in her life.
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Donald Parr | Belonging and Self WorthDonald describes the people and things that he values most as he lives in a long-term care home. > Listen to Story [00:03:33]
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Dorothea Lorenz | Honor My WishesDorothea outlines her wishes and fears for the end of her life.
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Idona Willock | Social IndependenceIdona describes the changes in her level of independence and its impact on the social activity choices she is able to make.
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Jim Brown | Communication, Spirituality |
Phyllis Hymmen | Quality of Life Amidst Loss: |
Success Stories
Tremendous successes have been achieved by long-term care homes working on a range of quality improvement topics.
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